Hello, my name is Edilvano Zanella, I turned 27 this August and I'm from Santa Catarina-Brazil. I've tried to get help from all sides, it's so hard to get help, out of desperation I was almost deceived by the Chuck Feeney foundation of Facebook when I asked for help in 2020, I was happy for 1 week, until they said that to release money I would have to pay an amount to pay the international exchange rate, I've tried to get help from celebrities, from business people, but it's impossible for them to see a message from me, and many don't care. I sent for about 2 weeks about 100 tweets a day to @pulte to get help and in desperation I couldn't get help and blocked me for sending so many messages and pestering him asking for help, many who saw my message followed me to try to take advantage of the fragility and despair. My video of this crowdfunding is in Portuguese, and the link to the YouTube video at the end is also in Portuguese, I don't speak English, and I used a translator to translate this crowdfunding in English, I've already done some crowdfunding without success, I've done about 5 or 6 already over 2 years but they all went wrong, maybe because it's hard to find the right people who show solidarity for the next. I will be forever grateful for any help I can get. I have suffered from severe mixed refractory depression, severe fibromyalgia, accompanied by generalized anxiety, panic attacks and depersonalization for approximately 10 years, with several affected in the family, I have stopped in the emergency room because of my illness approximately 300 times. Since childhood I had extreme anxieties and sadness without knowing the cause, I felt sick a few times in second grade because of anxiety having stopped in the emergency room. In 2012 the symptoms began to intensify in the 8th grade, but I still hadn't sought help. It was in February 2013 when I sought help for the first time, and since then the situation has gotten worse and worse. I managed to work from 2011 to early 2017, the last years of work were a lot of suffering and sacrifice. Refractory depression is a case of depression that does not improve with any type of drug. I tried several treatments, more than dozens of different antidepressants and other medicines but without success, I tried to do the treatment with electroconvulsive therapy (ECT) a technique that uses electroshocks, but I got partially better, I tried medical cannabis oil, but I had psychosis. I've tried raw diet, exercise, vitamins, therapy, and every treatment out there, but I haven't gotten any better either. I was diagnosed with severe mixed refractory depression, anxiety, fibromyalgia, depersonalization and anxiety, sometimes I even feel pseudodementia. So in 2019 I discovered transcranial magnetic stimulation, I tried to do the treatment with transcranial magnetic stimulation and I got 100% improvement in my symptoms, but if I stop the treatment, the anxiety and panic attacks return, I stay in bed with body aches for cause of fibromyalgia, and very depressed, disabling and terrible suffering. This treatment with magnetic stimulation is very expensive and costs BRL 500.00 each section for most doctors here, but my doctor used to pay BRL 100 for the cost in 2019 until I got better, then he suspended it and I got worse and cried out for to do it again but he charged a higher price, being 250.00 reais, when I got better he wanted to withdraw again, but luckily I cried and he didn't, but I don't have the money to do several sessions a week and be fine, I do 1 session every 14 days so it doesn't get worse than I am now, and I'm not able to maintain it, I'm having worsening depression, I've been doing TMS since February 2019, but I've been doing few monthly sessions for about 2 years because I don't have money and I need to do it so it doesn't get worse than I am now. I need to do some genetic tests such as the complete exome, quantitative blood alkylcarnitine profile, quantitative urinary organic acids, these tests cost an average of $1500.00 dollars, which in my local currency would give an average of R$7500.00 reais in conversion to reais updated now all together. These tests are to see if there is any inborn error, it could help to discover one of the causes of my serious illness.
The geneticist doctor who recommended these tests to me, to learn more about my genetics. I didn't get any help from the government, not even with legal action or even by SUS. Treatment with transcranial magnetic stimulation for 6 months for me costs from 5 to 6 thousand dollars, our Brazilian currency is worth 5x less than the dollar. Induction phase for me to achieve total remission of the disease, I need to do an average of 40 sessions from Monday to Friday and then keep weekly sessions to stay in remission, it would cost around 3 thousand dollars to do the induction to have total remission improvement with transcranial magnetic stimulation. I want to ask for your help if you can help me a little with TMS. Even if I can raise little, that little will help me a lot, for example, if I can get 1000 dollars for TMS or 2000 dollars, it would help me a lot, or even if I don't get help for TMS, I could be doing the genetic tests that cost 1,500 dollars to know the origin of my depression and to know if I have some kind of inborn error of metabolism. Any help that I receive, no matter how small, will make a big difference in my life, even if it's very little, I'll be happy to be able to receive help from people for the first time in my life, because I've tried help in every way and I couldn't . Thank you all for taking the time to read my help request and also thank you for everything.
